Seems so long since my last post!
Been very busy jet setting lol.....been back from Spain one week now and in that week have also been to London for a couple of days to see 'South Pacific' which incidentally was fab!And of course a bit of shopping!
Whilst I was away, I realsied I kept forgetting to take pain killers! I was only on paracetamol, diclofenac and MST 10mg at night, but as I kept forgetting I decided to see how I got on completely without and guess what, I DON'T NEED THEM ANYMORE! Well I do have the odd couple of paracetamol for the odd ache I get after I have done things sometimes, but on the whole It's pretty good.
Had a couple of days of not doing anything, its been nice to just relax at home. Off to London again on Wednesday, just for the day though, as I bought a coat from Burberry in Puerto Banus and I need to take it to a Burberry store to get them sleeves turned up (as usual they are too long). I forgot the receipt last week when we went. Paul wants to come again, which quite surprises me as he hates shopping, I think it's to stop me spending more money lol, however we have got 7 hours there and Ive never been down Sloan Street before, It just has to be done!
We are pretty much sorted now financially and even have enough to finish the extension, hopefully work will commence this week so I should get my new kitchen, en suite and walk in wardrobe in the next couple of months. Would give it all back in exchange for my health though. As for now though I feel great and intend to live a bit!
Monday, 29 August 2011
Friday, 5 August 2011
5th August
Don't know where the time is going!!! Only been home a few days, a few busy days at that, bloods and chest xray Tuesday (1st day home) Oncolgy appt wednesday, GP Thursday, and Mamagram today!!! Good news from Onc, chest xray good and no need for scan until December!
In between all that, doing holiday washing (will need it all again next week when we go away again) finishing making props, costumes bar and garden for 'Wild West' party tomorrow, need to sort out house ready for building work to comence whilst we're away. How did I ever manage to find time to go to work??
For now, I'm making the most of being well and just enjoying every minute xx
In between all that, doing holiday washing (will need it all again next week when we go away again) finishing making props, costumes bar and garden for 'Wild West' party tomorrow, need to sort out house ready for building work to comence whilst we're away. How did I ever manage to find time to go to work??
For now, I'm making the most of being well and just enjoying every minute xx
Wednesday, 27 July 2011
Saludos desde Menorca!
Arrived in Menorca 18th July. It has been a mixture of really hot weather and rain! Not too bad though as the rain has become a much needed break from the heat...phew....
I have stayed mainly in the shade and have been using fctor 30, still managed to pick up a bit of colour though (apart from legs, fake tan there I'm afraid lol.
Managed to watch the cricket (rainy day) and football (Villa v blackburn, as we speak - rain again!)
Tummy trouble has plagued me yet again, especcially as now I am almost morphine free. Immodium is rapidly becoming my NBF! I am eating very healthily (apart from the pancakes at breakfast every 3 days which are to die for, yum) and I rocken I have not put on a single pound. Alcohol, just don't feel like it...It took us 4 days to consume a bottle of red wine at dinner lol. We have been goig to the bar for a cocktail before dinner though ( I'm no good once I've eaten)
. The hotel is lovely, very modern and quiet (no children) we are not the oldest here by a long shot but are probably the first in bed lol. We have BBC 1, 2 and 3! and sky news, plus the internet to keep us entertained.
We hired a car for 4 days and visited most of the island! the old town of Cuitadela was fab for shopping but unfortunatly we went on Sunday when everywhere was closed :(( much to Pauls delight! I did manage to get a pair of 'Menorcan sandles' to add to my shoe collection though! lol
We now have 5 days left, home for 10 then off again to mainland Spain for another 2 weeks!
Adios for now! X
I have stayed mainly in the shade and have been using fctor 30, still managed to pick up a bit of colour though (apart from legs, fake tan there I'm afraid lol.
Managed to watch the cricket (rainy day) and football (Villa v blackburn, as we speak - rain again!)
Tummy trouble has plagued me yet again, especcially as now I am almost morphine free. Immodium is rapidly becoming my NBF! I am eating very healthily (apart from the pancakes at breakfast every 3 days which are to die for, yum) and I rocken I have not put on a single pound. Alcohol, just don't feel like it...It took us 4 days to consume a bottle of red wine at dinner lol. We have been goig to the bar for a cocktail before dinner though ( I'm no good once I've eaten)
. The hotel is lovely, very modern and quiet (no children) we are not the oldest here by a long shot but are probably the first in bed lol. We have BBC 1, 2 and 3! and sky news, plus the internet to keep us entertained.
We hired a car for 4 days and visited most of the island! the old town of Cuitadela was fab for shopping but unfortunatly we went on Sunday when everywhere was closed :(( much to Pauls delight! I did manage to get a pair of 'Menorcan sandles' to add to my shoe collection though! lol
We now have 5 days left, home for 10 then off again to mainland Spain for another 2 weeks!
Adios for now! X
Wednesday, 13 July 2011
Day after race for life!
Did the race for life last night with my daughter and my 2 sisters. We are still counting the money we have raised for cancer research uk but think the grand totel is just short of £2,000!
We had a great time although it was very emotional and I had a lump in my throat for most of the evening. Sarah and I were interviewed by BBC radio Stoke and I was even on the radio this morning for a live interview with 2 others who took part last night, only lasted a couple of minutes thank goodness, I think I'm more of a 'behind the scenes' kind of gal. I did have tummy cramps on the way round but used one of those 'cura heat' patches so not too bad. Over took loads of people too and manged to ge round the course in under 50 minutes!
This will be my last entry for a couple of weeks as we are off on holiday on Monday!
We had a great time although it was very emotional and I had a lump in my throat for most of the evening. Sarah and I were interviewed by BBC radio Stoke and I was even on the radio this morning for a live interview with 2 others who took part last night, only lasted a couple of minutes thank goodness, I think I'm more of a 'behind the scenes' kind of gal. I did have tummy cramps on the way round but used one of those 'cura heat' patches so not too bad. Over took loads of people too and manged to ge round the course in under 50 minutes!
This will be my last entry for a couple of weeks as we are off on holiday on Monday!
Friday, 8 July 2011
Friday 8th
Where is the time going?? Don't know how I ever managed to fit in work lol.
Been down to Oxford (hello everyone if you are reading) to visit friends at the JR. It was lovely to see everyone, I miss them all, I loved working there.
Been camping for the weekend too in Skegby to the annual 'do' this year was the Kangaroo do. Found camping a little hard, the weather was great duing the day but I got tired and needed to lie down, in the tent was impossible as it was like a sauna so had to revert to car with seat reclined and AC on! lol. Then at night it was absolutely freezing. Next year we will hire a motor home and go off on an adventure for the week!
Went on to York, what a beautiful city. Stayed in the Royal York Hotel and to be honest for a 4 star hotel a premier inn would have been just as good, wasn't worth the money apart from the location. I had been a little unwell (tummy troubles since Saturday), since I cut down on the morphine things have gone the other way. I had forgotton my hot water bottle (I need it to ease the gripy pain) so we bought some 'curaheat' adhesive patches. You have to stick them to your clothes though and my 'clothes' (well undergarments) were a bit too small! So I could only use them in bed at night stuck in side a pillow case! There we were, just managed to get to sleep on the first night and the fire alarm went off! It was 12.06! Everyone had to go outside until the firemen arrived and checked the place out, after that we couldn't get back to sleep.
We enjoyed York, walked round the city walls, visited Art gallery did some shopping and eat out. On the way home on Tuesday we even managed to fit in a visit to the Trafford centre for more shopping! It was Pauls idea and he hates shopping, he must love me. Luckily for him, I'm not the same as I used to be I get tire and fed up shopping now lol, so we were only there about 2 hours.
Been busy making props for the next party - Wild West- so have now finished painting cactus and totem pole lol, need to keep busy takes my mind off everything. Have started coughing again now and most of the side effects have dissapeared (exept for tummy ones), I Hope its still working. I do think about it everyday sometimes I have forgotton which is good as I just get on with things normally, things will never be 'normall' again though will they?
Been down to Oxford (hello everyone if you are reading) to visit friends at the JR. It was lovely to see everyone, I miss them all, I loved working there.
Been camping for the weekend too in Skegby to the annual 'do' this year was the Kangaroo do. Found camping a little hard, the weather was great duing the day but I got tired and needed to lie down, in the tent was impossible as it was like a sauna so had to revert to car with seat reclined and AC on! lol. Then at night it was absolutely freezing. Next year we will hire a motor home and go off on an adventure for the week!
Went on to York, what a beautiful city. Stayed in the Royal York Hotel and to be honest for a 4 star hotel a premier inn would have been just as good, wasn't worth the money apart from the location. I had been a little unwell (tummy troubles since Saturday), since I cut down on the morphine things have gone the other way. I had forgotton my hot water bottle (I need it to ease the gripy pain) so we bought some 'curaheat' adhesive patches. You have to stick them to your clothes though and my 'clothes' (well undergarments) were a bit too small! So I could only use them in bed at night stuck in side a pillow case! There we were, just managed to get to sleep on the first night and the fire alarm went off! It was 12.06! Everyone had to go outside until the firemen arrived and checked the place out, after that we couldn't get back to sleep.
We enjoyed York, walked round the city walls, visited Art gallery did some shopping and eat out. On the way home on Tuesday we even managed to fit in a visit to the Trafford centre for more shopping! It was Pauls idea and he hates shopping, he must love me. Luckily for him, I'm not the same as I used to be I get tire and fed up shopping now lol, so we were only there about 2 hours.
Been busy making props for the next party - Wild West- so have now finished painting cactus and totem pole lol, need to keep busy takes my mind off everything. Have started coughing again now and most of the side effects have dissapeared (exept for tummy ones), I Hope its still working. I do think about it everyday sometimes I have forgotton which is good as I just get on with things normally, things will never be 'normall' again though will they?
Sunday, 26 June 2011
26th June, been busy
Well it's been a while since my last post, been rather busy of late.
Last weekend we had the 'first' party of the Barrington party season, It was a much smaller than usual afair (I needed to see how I would handle it) but great all the same. Loved all the outfits, it was so much fun getting everything together it's now got me in the mood to have many more this year! Plans for the Wild West Extravaganza are well underway.
It was Chris and Jenni's wedding yesterday and what a lovely wedding it was. Can't believe Jenni made all that bunting! It was beautiful all of it. So lovely to see them together and the speak Chris made bought tears to my eyes (I cry through most of it I must admit). I even lasted until 11 o'clock (I did suffer with tummy ache from about 7 though, but of of the villagers fetched me a hot water bottle). Paul and I even had a couple of dances.
Since my last post we (thats me and my sisters) have also been interviewed by Cancer Reasearch UK as they are focusing on lung cancer awareness this year and have been in all the local papers.
Got a busy month ahead now! Going to 'Australia' next weekend lol well 'Australia' in a field near Nottingham. For the Kangaroo Doo courtesy of lovely friend Chris and family. Then off to York staright after for a couple of days. We don't need to go at the weekend we have all week and it was cheaper! lol.
Last weekend we had the 'first' party of the Barrington party season, It was a much smaller than usual afair (I needed to see how I would handle it) but great all the same. Loved all the outfits, it was so much fun getting everything together it's now got me in the mood to have many more this year! Plans for the Wild West Extravaganza are well underway.
It was Chris and Jenni's wedding yesterday and what a lovely wedding it was. Can't believe Jenni made all that bunting! It was beautiful all of it. So lovely to see them together and the speak Chris made bought tears to my eyes (I cry through most of it I must admit). I even lasted until 11 o'clock (I did suffer with tummy ache from about 7 though, but of of the villagers fetched me a hot water bottle). Paul and I even had a couple of dances.
Since my last post we (thats me and my sisters) have also been interviewed by Cancer Reasearch UK as they are focusing on lung cancer awareness this year and have been in all the local papers.
Got a busy month ahead now! Going to 'Australia' next weekend lol well 'Australia' in a field near Nottingham. For the Kangaroo Doo courtesy of lovely friend Chris and family. Then off to York staright after for a couple of days. We don't need to go at the weekend we have all week and it was cheaper! lol.
Saturday, 11 June 2011
Saturday 11th
Whilst in Cornwall I was contacted by the hospital (xray dept) and given an appointment for a CT scan for last Friday. I was a bit taken aback and concerned as my oncologist had said 2-3 months for the first scan to see if the treatment is working and this was only 6 weeks! My emossions were all over the place as 'what if they were scanning me too soon for the treatment to be working' and subsequently the treatment would be stopped! I was even more concerned and annoyed when I found out that pharmacy had asked for the scan as the treatment was 'expensive'!!!
Low and behold I went for the scan and on tuesday I found out that not only was the treatment working but the tumour had shrunk from 11cms to 8.5cms in only 6 weeks! It makes the spots and rashes all worth it. There will now be no question to me continuing with the treatment and my next scan is 3 months time.
I have also found (and joined) a forum calles 'Inspire' there are lots of people on there who are living with and surviving lung cancer even with advanced inoperable lung cancer like me. All of this has really given me hope and for the first time since this happened I feel that I can actually feel excited about life and not feel flat as I have been.
I am trying to cut the morphine down and hope that in the next couple of weeks I will be off it completely! That will be great news for my bowels!
Got a busy few weeks ahead now! Wedding reception tonight (congratualtions Dave & Andrea) Punk Party next saturday (need to figure out how to upload photo's on here!) Chris and Jenni's wedding the week after (Paul is best man xx) and then off to York to stay in a posh hotel the week after that! Then amongst all this I will be trying to find a nice holiday for Paul and me to go on straight after my next oncology and chemo appt! No chance of my retirement becoming boring!
Low and behold I went for the scan and on tuesday I found out that not only was the treatment working but the tumour had shrunk from 11cms to 8.5cms in only 6 weeks! It makes the spots and rashes all worth it. There will now be no question to me continuing with the treatment and my next scan is 3 months time.
I have also found (and joined) a forum calles 'Inspire' there are lots of people on there who are living with and surviving lung cancer even with advanced inoperable lung cancer like me. All of this has really given me hope and for the first time since this happened I feel that I can actually feel excited about life and not feel flat as I have been.
I am trying to cut the morphine down and hope that in the next couple of weeks I will be off it completely! That will be great news for my bowels!
Got a busy few weeks ahead now! Wedding reception tonight (congratualtions Dave & Andrea) Punk Party next saturday (need to figure out how to upload photo's on here!) Chris and Jenni's wedding the week after (Paul is best man xx) and then off to York to stay in a posh hotel the week after that! Then amongst all this I will be trying to find a nice holiday for Paul and me to go on straight after my next oncology and chemo appt! No chance of my retirement becoming boring!
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